Today's post comes from Lisa Pierce. Lisa is a former co-worker of Julie's, and a dear, dear friend to the family. This post is exactly what this Autism Awareness project for April is all about. Jack and Lisa have always had a special relationship... and this post proves it.
Brash, funny, heartwarming, and brutally honest... I proudly present Ms. Lisa Pierce.
“What Autism Means to Me” by Lisa “Auntie Music” Pierce
If you had asked me this question 5 years ago, my answer
problem would have been “nothing” or I would have made a “Rain Man” joke about
being a “really good driver.” Not
because I’m an a-hole (well, the jury is still out on that) but because I use
humor to deal with any topic, especially ones on which I am ignorant or which
make me uncomfortable. That all changed
when my nephew Jack was diagnosed as being “on the spectrum” a few years ago.
Now Jack is not my “biological” nephew but I don’t buy into
all that “blood is thicker than water” crap.
We choose our own families. I’ve
been extremely blessed to be welcomed into the family of Julie and Jordan,
Jack’s parents, and two of the very very best people I’ve ever known. I’ve been there since the very beginning of
Jack’s life (I changed his first diaper!) and from the start I’ve had a very
special connection with him that I’ve simply never had with any other
child. I simply find him extraordinary
and I always have. Everything he does is
fascinating to me. From birth I knew he
was “special” but I never thought of that term having a negative
connotation. I mean “special” like
amazing. The truth is that I really
don’t like that many kids. I mean, let’s
face it … kids are kind of tiresome.
They don’t drink bourbon or watch any of the Real Housewives and aren’t
usually sports fanatics so they don’t usually hold my interest for very
long. With Jack, however, you just never
know what is going to come out of his mouth.
Which I love. Because no one
really knows what will come out of my mouth either. So we’re sort of kindred spirits. I could fill pages and pages with Jack
stories. Just to give one example (one
of my favorites), whenever Jack comes over to visit, I always encourage him to
draw pictures I can put on my refrigerator.
One day, Jack drew sort of a scary picture of a Medusa-like looking
creature. Once he finished I asked “So
Jack, what do you call this masterpiece?”
Without missing a beat , Jack responds “A Beautiful Day for Love.” None of us had any idea of where that came
from. I laughed so hard I almost wet
myself. To this day, I have that picture
next to my bed. And I laugh every time I
look at it.
I vividly remember when Julie called to tell me that Jack
had been diagnosed. My first reaction
was outright denial and anger. I simply
refused to believe that my amazingly cool nephew could be autistic. Like I said, all of my knowledge of autism
came from watching “Rain Man” and Jack seemed nothing like Dustin Hoffman to me
so I thought that obviously whoever tested Jack was a moron and should be fired
immediately. In fact, I was ready to
lodge a formal complaint with the school district. Or at least write a strongly written
letter. Once I calmed myself down and
learned more about autism through Julie and Jordan and my own reading, I began
to recognize some of the signs. Autism
is such a broad spectrum, however, and I’m still confused about where on that
spectrum Jack falls.
A Beautiful Day For Love
Jack Capell 2010
Appears graciously from the Lisa Pierce collection
Beautiful! How lucky that you have each other.
ReplyDeleteBeautiful post. Very honest and humbling.
ReplyDeleteI love this post. Thank you!
ReplyDeleteA wonderful post! Thanks for sharing it!
ReplyDelete