Today's post in the Autism Awareness Month project is a special one. It is written by an attorney... who also happens to be my wife and Jack's mom.
She writes about advocacy and the stigma of being a working mom. She writes about how in watching our children grow up, sometimes we do too.
Julie has written for us before (here), and I finally coaxed her into doing it again.
This compliment might be getting old, but she is still the best thing my name has ever been attached to...
Ladies and Gentlemen, It is my treat to present Jack's mom and my wife, Julie...
What autism means to me is a
lesson in judgment. Probably just the
first in a string of life lessons that my son will teach me.
For most of my life, I’ve been
the typical people pleaser. Even though
I often argued with my mom about the best course of action, I (almost) always
did what I was told. I dutifully studied
hard in school. I never got in
trouble. I always made sure to be nice to
everyone. In fact, I secretly challenged
myself to always make sure that everyone liked me. This type of reality worked for me. It made me happy, comfortable and
secure.
This all changed when my son was
diagnosed with autism. I remember going
to a child’s birthday party soon after my son was diagnosed. Instead of playing with the other kids, I watched
my son obsessively take one balloon after another from the dining room to the
backyard where he released it into the air.
When I tried to stop him, he screamed.
I remember the looks of disdain from the other parents at the
party. I remember the looks of the other
kids, who were both frightened and amazed.
I remember dragging Jack through the house towards the front door to
leave, as he screamed and thrashed.
Incidents like this
continued. Tantrums in the middle of the
grocery store. Jack hitting and kicking me
while I struggled to get him into a car after leaving the park. Jack yelling that he hated me in the line at
Target. Me losing it and screaming at
him in my loudest voice. It was my own
worst nightmare. I was seen by others as
a terrible parent who couldn’t control her son.
I was also the mother who
worked. And not just any job, I was an
attorney who worked twelve to fourteen hour days, and often times on
weekends. Therapists, teachers, and even
my coworkers would jokingly ask whether my children knew who I was. I was seen by others as a workaholic attorney
who didn’t care about her children.
The overwhelming feeling of
judgment only added to the sadness I felt for my son and his future.
This all changed in May of 2011 –
Jack’s kindergarten placement IEP (individualized education program). Jordan and I were shocked when the IEP team
recommended that Jack attend a special day class for kindergarten. Jordan (who
never has a problem standing up for what he believes in) was the only person
during the IEP that stated he didn’t want this, that he wanted Jack to be given
a chance to attend general education kindergarten. I didn’t know what to do, and I felt the
familiar pull of doing what was expected of me, of following the sage advice of
professionals, and of not rocking the proverbial boat.
We asked for two weeks to explore
our options. During those two weeks,
Jordan and I talked of nothing but Jack’s future and what we thought was best.
We researched. We spent hours speaking
to professionals. We took tours of
special day classes and general education classrooms. Finally, we decided that the best choice was
to advocate for provisional placement in a general education classroom.
Instead of feeling nervous about
the next IEP meeting, I felt invigorated.
Advocating (something we hadn’t had to do until now) was something I
knew how to do. I prepared just like I
normally did for court. I prepared a
binder of materials and practiced my arguments with Jordan and the other
attorneys in my office. Delivering my
speech to the IEP team is my proudest moment.
Not because I realized that I finally had something to contribute to my
son’s future. Not because all those
hours in the office were finally paying off for my family. But because in that moment, I didn’t care
about the IEP team’s reactions. I didn’t
care that they looked disappointed. I
didn’t care that they disagreed. All I cared
about was what I thought was best for my child.
Is it OK to be in love with your wife just a little?
ReplyDeleteAaahhh, you are too kind, Darrin. We really can't wait to meet you and your beautiful family (especially your darling little redheaded girl).
DeleteJulie, this is beautiful. And I'm crying. I've worked outside of the home for 13 years. I know those looks...those whispers. I know those moments of losing yourself in his meltdown. Its all part of our journey as parents i suppose. Bottom line...Jack has two amazing parents and one in particular who is an absolute professional at doing what needs to be done on his behalf. You should be proud...of yourself, your family amd that beautiful sweet boy. xoxo
ReplyDeleteThank you so much! Your words and support mean so much to me and Jordan. Please keep writing...you are an inspiration to us all!
DeleteYou are a wonderful mother and a consummate professional. Proud to call you a friend. And you made me cry. ~Valerie
ReplyDelete