Friday, July 27, 2012

Things Have Changed

I read a lot of autism parent blogs. I shared a link to one I read recently on the Autism Sucks Facebook page. Nicely written by a mother about, admittedly simplifying, the kindness of strangers during a meltdown.

I think we as autism parents worry too much about what other people think when we're out in the community. I know I do. I wish I was at a point in my human/parenting development that I could truly say "I don't give a shit what other people think", but I am not. Meltdowns embarrass me. They embarrass my son. You think I enjoy all the stares and whispers in the grocery store because Vons decided to put their apples on display instead of the bananas they had last week?

I wish that sometimes I could step away from all of this and be in the shoes of the NT parents watching me. Watching my repetitive ABA techniques, setting schedules, telling a "social story", establishing choices, and, most importantly, following through with consequences. I know how I look. I get it. I look like a tool.

Or do I...

Earlier this summer I took the kids to Pismo Beach for a weekend with their grandma and grandpa. The wife was in trial and needed to work all weekend so we decided to get out of her hair. We'd been there before. A quaint beach town on the Central California coast. It was familiar to all of us.

This weekend, however, there was a classic car show in town. It was crowded. The pier/downtown area had been sealed off to display cars and carnival type booths (clothing/concessions/auto services). Friday and Saturday were great. We went to the beach for hours. Hung out in the carnival. We even looked at some of the cars.

Sunday came and Grandma, myself, the boy, and the baby girl took our daily beach trip. We made our way to the pier and readied ourselves for the 4 or 5 block walk back to the house. Then it started. For some reason, we weren't supposed to walk home the same way we had the three previous days. I gave the choice to walk home my way, or a different way. It was ignored, so I made the choice for him. The meltdown (screaming/yelling/pulling/crying/snot-flying protest) ensued. Right in the middle of the crowded carnival. Then something amazing happened... Grandma (my mother) said "I got this".

So Grandma, knowing how important follow-through is to ABA families, guided/dragged the protesting child down the main street of Pismo Beach. She did a great job of reminding him where we were going and why, and mostly ignoring his actions. Good job, Mom.

Here's the part I really wanted to write about.

I lagged behind with the baby girl in her stroller. I got to watch this meltdown from an outsider point of view. Nobody knew I was related to that kid. I got to hear the comments that were made by strangers (fans of classic car shows, no less).

I readied myself to defend my son. Readied to defend ABA. Readied to defend my mother.

But there was nothing to defend.

Most people watched and said nothing. Some smiled an empathetic smile. If a couple was walking together they might exchange a "remember that" or a "been there". Someone said "autistic". Someone said "poor kid".

But someone said, "man that lady is a saint". And someone said "Do you think I can help?"

The meltdown ended. The rest of the walk home was spent in contemplative silence.

All the time I have wasted worrying about people silently judging me as a parent was thrown out the window. This was a rough crowd... and everyone was nice. It was a perspective I had never had before. If all these strangers thought I was a tool, at least it was the right tool for the job.

Monday, July 23, 2012

We are the Champions

Okay, I admit the title is a little basking in reflected glory.

Ernie Els wins the Open Championship.

Ernie is the father of a 9 year old child with Autism. He runs the "Els For Autism" charity.

I had the pleasure of competing in the Southern California event last year. My partner and I (who are not good golfers) raised enough donations to attend the finale in Vegas where I had the honor of meeting and spending some time with Ernie Els... a fellow Autism Dad.

Ernie has been plagued by his putter over the last few years. In the Open Championships, it was well documented that while he was number one in Greens in Regulation, he was in the 70s for putting. Ernie won the championship because he was the most consistent player over four days. The only of the top five to finish Sunday under par.

And, on the 18th, Ernie sank a 15 foot putt to win his 4th major.

Consistency. Ernie needed a 15 foot putt to win. Ernie's putter has been the elephant in the room for many years, and here it would save his life. You just keep trying.

Just like raising a child with Autism.

I'm proud to know you, Ernie Els.

Our community is lucky to have you, Champ.