Tuesday, April 21, 2015

Till Human Voices Wake Us

I overheard a conversation the other day between Jade and her babysitter. I only caught the tail end, but it was lovely.

Dee: "Well, Jade, if Dee could be in two places at once, that would be a wonderful fantasy world"
Jade: "And there would be an octopus!"

I still smile every time I think of this. The thought that the idea of Jade's fantasy worlds automatically contain an octopus delight me. I imagine he is a friendly octopus. Perhaps with a British accent. Maybe he wears a top hat and monocle. A top hat that magically stays on his head under the sea. He is probably purple. Maybe pink.


This morning Jack woke up in a mood. He was excited to tell me about his dream. He prattled on and on about he and his classmates being chased from a haunted house by dozens of snakes. This is not unusual. Jack is pretty interested in both snakes... and his classmates.

One thing that we have been working on with Jack is better pragmatic speech skills. Pragmatic speech (put simply) is how to have a conversation, turn-taking, when to STOP talking, etc. Jack has a tendency to repeat himself over and over again. When I talk to him about it, he claims it's because he wants to make sure he was heard.


Jack: Dad! Fantastic Four was Stan Lee's first series. He wrote it in 1967. He was his first series. He was the first writer to write about them. It was the Fantastic Four. They were his first. It was 1967. They were definitely his first.

(I have no idea if that is factual)

The newest approach is to "cut-him off" after a complete sentence (or thought) to do two things 1) acknowledge that I heard him, and 2) Ask a question that furthers the conversation in a different direction to avoid repetition.

Ideally, it would look like this:

Jack: Dad! Fantastic Four was Stan Lee's first series.
Me: Wow. That was his first? What year was it?
Jack: 1967, He wrote it in-
Me: 1967 was a long time ago. Did he draw the pictures or just do the writing?
Jack: I don't know.

Wouldn't that be fantastic? Wouldn't it be a wonderful world if I had the patience to do that every time? With every conversation? Day after day? Week after week? Month after month?

Because often those conversations end with...

"I already heard this part" or worse yet, "stop talking"

I openly admit, that I eventually have enough of being on my "A" game and will literally "silence" my son.

And that may be the worst thing you can do to any child.


This morning, however, I was on my game. I Jumped sentences correctly. I validated narrative. I furthered the story with leading questions.

Most importantly, I enjoyed the story. Sure, the hero's journey was incomplete, the imagery was sloppy, and there was a little too much deus ex machina for my taste, (a little writer humor for you) but Jack told me an entire story. In a proper way.

Now, I was trying. I was making the best effort I could to "guide" the conversation.

Son-of-a-bitch, that approach worked.

I half expected to see Jade's purple octopus come by.


Jack, I pledge to work on this with you. I respect your voice. I am a writer myself. I write blogs about you, and me, and Jade, and your mom, and your sitter, and your grandma, and your cat, and your imagination.

This is the medium I have chosen...

Perhaps, if you've read this far, because nobody can silence me.

I know you have taken to journal writing. You have notebooks upon notebooks of your innermost thoughts and plans and fantasies.

Do you want to know a secret?

I have read every single one.

And you have a voice worth sharing.


I, too, once dreamed of the sea.

"We have lingered in the chambers of the sea
By sea-girls wreathed with seaweed red and brown
Till human voices wake us, and we drown."

(T.S. Eliot)


Thank you for reading.

Monday, March 30, 2015

I Hope You Dance

I spent the last two weeks with some pretty horrendous back pain. The horrendous part was only about three days, the other 10 were spent trying as hard as possible to not aggravate that horrendous pain from rearing its ugly head. On a sidenote, if you ever have to spend four days on the couch "relaxing" your back, do it during the NCAA Final Four tournament.

My wife really stepped up during that week. My parents, get this, came down to Los Angeles and took the boy home with them for a few days, since he was on Spring Break and I was not in a position to take him out of town, nor even chase him around.

Forever grateful.

I did, however, manage to take care of a few things during that week. I met with the accountant to take care of taxes. I made it to a steak dinner we had been planning for about a month. I spent a lot of time arguing on the phone with the insurance companies.

And, the task my wife just can not do, I took the baby girl to her latest blood draw.

Most of you know that my 5 year old baby girl has epilepsy. We're still new to the "epilepsy spectrum" and experimenting with meds and dosages. The rough part is that Jade has to have her blood drawn fairly often. All routine stuff, checking med levels, etc. but tough on a 5 year-old. My wife cries when she has to give blood herself and has "opted out" of taking the baby girl. That's cool. Besides, Jade is a champ. She doesn't enjoy the process, but she does it. So, last week, Jade, her faithful stuffed Piggie, favorite blankie, and her old man with his cane went down for her blood draw.


I hate to dance. I love music, but dancing is not for me. Jade, however, loves it. The first morning my back was not going to cut it, Jade was at her dance class. I called my wife and said I couldn't do it. I wasn't gonna' make it home, could she swap out with me. She did.

That afternoon, I had to explain to Jade that Daddy was "tender". She had to be careful running and jumping on me for the next few days. She needed to help me picking things up off the floor. She had to hug me very gently.

And she obliged. Every morning she asked me if "my back was better yet". She gave me the most gentle hugs. It was very sweet. Jack, on the other hand, figured out pretty quickly that I couldn't catch him very quickly and took the week to get into all sorts of "prohibited items".

I was truly impressed with my daughter's show of empathy.

Last week, Jade and I are in the OT lobby waiting for Jack. I'm feeling better (at least enough to be out and about). Jade finishes her homework and asks if we can turn on the TV (I think it was a Tom and Jerry DVD this week).

The theme music starts and Jade asks me if my back was better. I told her I was doing better. So she asks if I would dance with her. Not that good yet, Baby Girl. But I'll watch you.


I painfully made my way in to the chair at the diagnostic lab. Jade made her way up to my lap. She knew what was coming and started to whimper a bit as the nurse tapped around to find the best vein on her arm. She started to cry when the nurse put that blue elastic band around her bicep. I told her to look at my face instead of the needle as it went in. She cried a little bit. She asked for it to be over. She started counting to 10 through her tears (hoping when she got to ten that she would be done). But the nurse needed 3 vials. This was going to take more than 10 seconds. I assured her it was okay and then, through her tears, she had a seizure.


When we got home, Jade was allowed to play with her new toy. A talking "Gabby" doll that she had earned for being so brave. She told her mom how well she did. She was showered with attention and praise.

She even let her daddy take a goofy picture.


Jade has what are known as "Absence Seizures". She rolls her eyes up to her left and simply stares off for 2 or 3 seconds. Sometimes, she kind of "pulses" with them. She has no idea what is happening during those 2 or 3 seconds. At least that what we surmise.

What is amazing, however, is that she can not tell us if she just had a seizure, but based on the reactions of others, she can ask us if she did.

I am truly impressed with my daughter's show of empathy.

I spend a lot of time wondering what happens during those 2-3 seconds. Where does she go? What does she feel? Is it painful? Why doesn't she remember?

But I do know, that she was fretting, crying, scared and brave at the same time. She stared up into my eyes and it suddenly stopped. She pulsed a little bit as I stared into her tear-stained blue eyes. It's an image I will never forget. She snapped back, smiled at me, and turned her head to see the needle in her arm. She started whimpering again and then it was over.

I was given proof that she has absolutely no idea what happens in those 2-3 seconds.

I like to think she goes somewhere beautiful. I like to think that she goes somewhere she can feel no pain. I like to think it's perfect for her.

Well, Jade, wherever you go...

I hope you dance.

We'll get there, my love.

Wednesday, February 11, 2015

The Endless River

Last night my five year-old daughter woke up around 330 and came in to our room. "I had a bad dream." She wanted to get in bed and snuggle with mom. Mom, as Jade has NEVER wanted to sleep with us... EVER, delightfully obliged. I could hear them whispering as I fell back asleep.

What was your dream about?
I was dreaming that I was talking to all of you and then everyone turned into stuffed animals.
All of us?
Everyone. It was very scary.

And I drifted off to my own dreams.

For me it was the same dream I've had since I was a kid. I had it several times. My dad had recently taken me to the mountains for an Indian Guides YMCA outing. We fished and told stories around a campfire. We probably made s'mores (but I don't remember for sure). And we stayed up later than I ever had before in my 6 year-old life. I remember climbing into the white Volvo with my dad and we drove about an hour home. You would think it was the fishing or the s'mores or the time with my dad I'd remember. But it was the drive home.

I had never driven in the mountains before. I vividly recall hugging a mountainside and trying to look as far down the other side of the road as I could see. But it was night... just blackness. I knew the bottom was down there somewhere, but tonight was just darkness... nothing. I was horrified at the unknown. I remember the sheer terror I felt as we rounded every bend and the headlights would shine briefly on the top of what hid certain death and uncertainty below. It was both terrifying and exhilarating. I marveled at the duplicity of the road. The headlights showing me what lay in front, but not what lay beneath.

Thirty Five years later I had the dream again. In my dream I was riding my red beachcruiser Schwinn. I remember it well. It was fat and clunky. Safe. It represented freedom. I could go wherever I wanted on my bike. It would never fail me. In my dream I was riding in, you guessed it, the mountains. It was certainly a bit of deus ex machina as to how a six year-old got to 4000 feet in the Sierra Nevadas.

I was free. I was literally above the world and held that childlike exuberance that gives us unlimited confidence That feeling I so, so long to re-capture now.

And then night falls.

I take a turn too fast and tumble over a railing.

And I fall.

As a child, I would usually wake up here. Gasping. Terrified.

But not always. Now, as an adult, with a better understanding of the silent lucidity of dreaming, I allow myself to fall. It's darkness, and I'm still falling. Certain to smash into something... soon!

Splash! It's a river. A river moving fast. I look to the left and right... nothing but rushing water. I frantically turn around and notice calmer water, with several reeds piercing the surface. I could probably grab on to them. As long as I don't give up swimming. The current carries me as I try my hardest to get there, continually knocked back into the eddy of my swirling river. I try again and again until... at long last... I grab a reed.


I think of the journey with my son. I think of all the mountains and rivers and chasms and unknowns we have, and will continue to face with his journey through autism. I get the metaphor.

But I think of my daughter. I think of her journey through epilepsy. I think of how ignorant I am and how little I can guide her. I oddly wish it were autism, because the devil I know is better than the devil I don't know. I'm reassured that 80% of kids with absence seizure childhood epilepsy "outgrow" it by adolescence... but that means that 20% don't.

This evening, we got the news that she was going to need to do further blood work tomorrow. Routine. Checking levels. But, have you ever taken a 5 year-old to get their blood drawn? I have. It's terrifying to them, and it takes longer than a quick shot in the arm.

But my baby girl is a champ. She said "okay, daddy. I'll do it again. But I want a new Equestria Girl doll for it."

So, tonight, I took her Target to get the Equestria Girl doll for tomorrow's reward. Apple Jack. On the way to the register, she eyed the Los Angeles Kings (excuse me, World Champion Los Angeles Kings) hockey caps. She said she wanted one. I said, "are you sure? I can get you a different hat, something with the equestria girls?"

"No, daddy. I want to be like you"


And I think to myself... "why?!?!"

I am scared baby girl. I am scared that I can only see the surface and terrified of the darkness below. We might fall. We might plunge into that darkness and find ourselves in the rushing water. Helpless. Flailing. Overwrought. Seizing.

We could take the easy way out, baby girl. We could wake ourselves up. We could return to the comfort of mama's bed. We could go back to that warm embrace of maternity. We could be safe.

Or we could swim.

Thursday, December 4, 2014

A Tale of Two Turtles

So this is not autism related at all but it's a funny, heartbreaking story nonetheless submitted entirely for your entertainment.

We spent the Thanksgiving week in Lake Tahoe, CA. It was great to get away and the kids both did great and had a great time.

On Tuesday, I took Jade (4) to the arcade at the casino and she won enough tickets to buy four erasers that are shaped liked turtles. Any of you that frequent arcades or Chuck E Cheese know ow frustrating the prize counter is. I mean we spent about $20 to win enough tickets to buy four... ERASERS!?!? You could probably buy a three-pack of these little chingaderos at the Dollar Store, but, no she earned them. She pressed the right buttons and had all the skee-ball skills to win enough tickets to buy 4 turtle erasers. She named them. One was pink, one blue, one green, and one yellow/orange. The shell comes off so you can have two, count them two, erasers if you need them. But, once again, they were hers. She earned them. She gave them backstories. She decided to love them and they turned out to be well worth the $20 in entertainment value.

So, Thursday night rolls around and we are going to drive up to Reno to have Thanksgiving dinner with the in-laws. Jade asks if her turtles can come with. Of course they can. I tell Jade they can stay in my special pocket (the lower, seldom-used pocket on a pair of cargo shorts). I'll keep them safe for the drive to Reno. Reno is a dangerous place, after all, and turtle erasers deserve protection beyond their hard gummy shells, right?

As it usually goes with four-year olds and their fathers' suggestions, the pocket was not an acceptable means of transport. "It's too dark" "The turtles are too scared" but her complaints had a fatal error in them. She had already established that the orange turtle was clearly the leader and most brave of the bale (I looked that up). So I told her that the orange turtle could talk them in to it. He turned to the rest of the cowering turtles and Jade made a speech to the cowering turtles of bravery and confidence that would make Braveheart fans proud. So the turtles entered the lower pocket and were not heard from for the rest of the evening.

"They will be fine, Jade", I reassured my doubting daughter.


The next morning as I was brushing teeth, my wife set something down that she had found in the dryer.
I thought nothing of them.
We went back to Reno for the day and when I was playing with the kids outside, Jade pulled this out of her backpack.

"Daddy, where are my turtles?"
As I fumbled in my pocket for those funny looking erasers my wife had handed to me, it hit me. I never took them out of the pocket... and they must have gone through the wash... those funny-looking erasers must have been...
"WHHHAAAAAA! What happened to the turtles!?!?"
I had pulled the heads out of my pocket and Jade had seen them.
She wailed.
"Daddy! What happened to the turtles?"
"I accidentally put them in the washing machine, Jade. It'll be okay"
"Okay!?!? That's their heads!?!?"
She became a bit more hysterical. I tried my best to reassure her.
"Look, Daddy, that one doesn't have a mouth anymore. He couldn't scream for help"
I started to feel really bad for her.
"Jade, it'll be okay. It was an accident"
She simply sobbed for a moment.
"But, daddy, they were so scared. Remember they didn't want to be in the dark?"
And finally the words that haunt me still:
"And you said they were going to be okay"
It's okay folks. A friend of mine found them on-line and I ordered Jade a dozen (for only $4.99... can you believe the profit margin of that damn arcade?). I felt so bad for her. I did, indeed let her down.
But a few days later, I found myself so impressed with her.
You see, Jade is only 4. I am sorry I was the one that committed the reptilicide, but she cared SO much. She had created back stories. She established a leader. She showed a true empathy.
And she was so, so very sad for them.
And she is only 4.
These are things we have worked on with my son for 5 years now. He has such difficulty taking perspective already... true empathy will hopefully come with more maturity, but he still has such a poor understanding of the subject. I found myself sad for him.
So I told him the story. He sat for a moment. I expected little or no reaction. Finally:
"Dad, is Jade sad that you killed her toys?"
Yes, my boy. Yes she is.
"Did you know that they ate turtle soup on Scooby Doo goes to Zombie island?"
I did not know that.

Friday, November 7, 2014

My Autistic Son Made Me Throw Him Off A Bridge Today

I was an 11 year old boy when I learned the word filicide. Her name was Erin Hollohan. She went to school with me. She rode my bus. She was the only other redhead on my bus, and we had somehow bonded over that... like we were going to need each other through the next few years. She was in my class.

She was not autistic.

Her father put a bullet in her brain one summer evening.

And I never got to tell her good-bye.

Here is a link to an article

On Tuesday morning, Nov 4, 2014, I was a 40 year-old man sitting at my table when I read a news story about a mom in Oregon who threw her 6 year-old son from a bridge into the Yaquina Bay. The body was recovered almost instantly. The mother arrested. The boy was autistic.

Her is a link to an article

Here are two examples of filicide. I hope you read the articles, or are already familiar with them, because there is a key difference in them. The neurology of the the victims is not mentioned in the first one.

Susan Smith, Marcus Wesson, Andrea Yates.
Gigi Jordan, Kelli Stapleton, Jillian McCabe.

Three murderers where the neurology of the children (16 total!) is never mentioned.
Three murderers (or attempted murders) where the neurology of the children (2 total) is mentioned.

Filicide - noun - the act of killing one's son or daughter.


Today I find myself wanting to break my silence on this topic. After McCabe threw her boy (London) from a bridge, I could no longer stand on the sidelines of what has become quite the controversy in my community. I am raising an 8 year-old boy with autism. His name is Jack. Life can be difficult at times. Sometimes I even need a break. Sometimes I will walk out of the house and mumble to myself all the way around the block. Sometimes I will call my mom, or a friend just to talk. Sometimes, I will feel sorry for myself. Sometimes, I will write a blog or post something on Facebook because I really, really want someone to say "You're doing a great job". Sometimes I want validation. Sometimes I want to escape. Sometimes I feel like my life is harder than yours, and sometimes I don't.

I have NEVER wanted to throw my son off a fucking bridge.

So starts the great divide in my Autism community. Sometimes in whispers and sometimes in shouts the community will say "I get it"; "We all have a breaking point"; "She just needed more services"; "How can we reach out, so that this won't happen again!?"

And it's usually tempered with "Let me clearly state, I don't condone murder, but..."

But what?


In cases of filicide, the neurology of the victim is irrelevant.

In fact, mentioning it is harmful to our community. It suddenly becomes an outlet, an excuse, a disorder, an anxiety that accomplishes nothing more than blaming the victim.

The Neurology of the perpetrator is the key and, eventually, what will be on trial... both in court and in public opinion. When Susan Smith drove her children into a lake nobody said "Let me clearly state, I don't condone murder, but her boyfriend really was wealthy". When Marcus Wesson killed 9 of his kids, nobody said "Let me clearly state, I don't condone murder, but those kids WERE going to be exposed to a false God". Nobody said "I get it". Nobody said "Have you walked a mile in their shoes?" Nobody said "Judge not lest ye be judged".

The trials and news reports simply and quickly and appropriately attacked neurology and psychology of the killers. Clinical words like psychopath, sociopath, and narcissist were bandied about. Less Clinical words like crazy, insane, and monster were bandied about as well.

The most recent of these murders (McCabe) was presented to me in an article that ended with these words : McCabe asked for help before committing the most horrible act a parent can commit. Friends and family who read her plea could never have fathomed that this would be the outcome. As parents, we can take something away from this tragedy: Watch and listen. When a fellow parent begs for help, don't hesitate to reach out.


My community has made this a rallying cry for better services, for more funding, for more awareness. Every time a "solution" is brought up, however, I cringe at the devaluation of London's life a little bit more. One more person tacitly saying that "they understand". One more person blaming the victim.

Erin Hollohan was killed by her father 28 years ago. Never once have I heard something like "If only Erin had done better in school, he wouldn't have been so unhappy".

The fight for better services and support are very important to our community, but not on the backs of our murdered children.

There may very well be a monster in the room, but his name is not Autism.

Wednesday, October 29, 2014

Seiz(ure) The Day!

My wife and I have an 8 year-old boy with Autism. We have been through the wringer, experienced the highs and lows, and triumphed regarding services for the boy. State Regional Center, Insurance Company, School District, physicians, psychiatrists, and aide workers... we've seen them all. Our journey with my son is not a tale of woe of lack of services (yet), but rather a careful weaving and negotiating of which services are the most appropriate. Through it all, and looking forward, we are confident that we have the tools and Los Angeles has the resources, and we have the patience, and my boy has both the steadfast determination and endearing nature to make this journey the best it can be.

We are, at long last, and confidently, hopeful.


My wife was the first to say something. She came to me and said "have you ever noticed the baby girl rolling her eyes? There's something I don't like about it."

I started noticing it, too.


Absence seizures (formerly called petit mal seizures) affect about 1 in 500 people and are most common in children aged 5 to 15. Sudden increased electrical activity in the brain neurons, result in what is commonly seen as a staring spell of unconsciousness, usually lasting 3-10 seconds (more or less in some cases). They are usually harmless and mistaken for "daydreaming" in school aged children. About 70% of the time, the child simply "outgrows" them. There are very successful medications to eliminate them entirely with few side-effects.

About 25% of the time, however, they can develop into tonic-clonic (grand mal) seizures. Tonic-clonic seizures present more the way that most of us think epilepsy looks (brain activity accompanied with movement, convulsions, impaired speech, etc.). Untreated, they can, in rare cases, lead to permanent brain damage.


All of that information was from WebMD. I found pretty much the same information on Hopkins Medicine, Mayo Clinic, NIH, and even Wikipedia.

Where I didn't find any of that information was from my daughter's neurologist.


My wife refuses to take our daughter to the dentist. Not because she has any issues with dentistry, but rather she can't take her baby crying or scared, and, let's face it, the dentist can be a scary place. She has no problem taking the boy, however. So, somewhere in the parenting responsibility negotiations I drew the "taking the baby girl to the dentist" straw.

I could talk about that forever, but I need to speed this up.

So, we took Jade to her pediatrician and told him we were seeing what we thought were seizures. He agreed. He asked us to try to catch it on video and put in a referral to a neurologist to our health insurance company. There are no pediatric neurologists in our HMO network, so they would find one that accepted our insurance. It was approved. An appointment was made.

And we took our baby girl, our precious pride and joy, our perfect angel, here:

No. We did not. This "doctor" was not even licensed to treat children. An angry phone call was made and we were sent to another neurologist.

The office was a little nicer, yet still filthy. The doctor was friendly. He was sweet to Jade, and she was an awesome patient. He did a simple EEG and it confirmed the seizure activity. He told us this goes away 100% of the time and take these meds (wrote a prescription).

"What about side effects?" "What are seizures?" "If they are harmless, and go away 100% of the time, why do we medicate?" "Can you tell me more?" Were just a few of the questions we were asking... that went unanswered. He told us to start giving her the meds and come back in three weeks and he can answer all of our questions then...

"But, how do we dose up the meds"?

I was handed a piece of paper.

"I have a lot of patients to see today. Google this"

So, we will not be going back there either.

We called the insurance company again. We (with our pediatrician) have requested a "real" neurologist... in the neighborhood, not the cheapest quack on their payroll. We will have a "professional" EEG done at Children's hospital Los Angeles and do our on-going care with a new neurologist.

That has not been approved as of this blog.

Meanwhile... The seizures continue for this little angel.


As is the case with most of my blogs, I fully intended to write about how fucked up and wrong access to health care is in our country... But I'll save that because I want to end this about something else...


Jade, I promise you that your mother and I will get to the bottom of this. You are our precious baby girl and you deserve better. I am neither scared, nor intimidated, by this impending health care battle. You will thank your mother and I...

But thank your brother first.

That's right. The same one you jump for joy to see.

He is the one that has taught us all how to fight.

Thursday, October 16, 2014

On Being Neurotypical

In our community we often use the term "Neurotypical" (or NT) to mean "Not-Autistic". The term "Neurotypical" means having a typical neurology.

Jack has a sitter three days a week after school. Almost a year ago, we went to an agency (Care.com) looking for someone to "have fun" with Jack 2 or 3 days a week after school. At the time, he had therapy 5 days a week in addition to school and we felt he didn't need another therapist... we just wanted someone to have fun with him... he deserved it.

We interviewed several sitters, found one we really liked and the young lady had to decline days before she was to start. So, I re-posted the ad, and went to a bar to watch a football game one Saturday afternoon. I received a new response... not only was she interested she was in the neighborhood and we met 30 minutes later... and we had our newest sitter.

And the jokes started instantly about how much she looked like us. "We didn't know you and Julie had an older daughter" "Is D your sister or Julie's?" "She's too young to be Jade's mom" and we laughed along.

What we didn't expect was to gain a family member. What we really didn't expect was for Jack to gain a role model.

You see, D is an adult living with ADHD. She told us when she interviewed with us and Julie and I had the same misguided thoughts we had before about adults with ADHD. But this was different. It wasn't a buddy of yours forgetting where their car keys are and saying "must be my ADD" or not remembering a name of a friend and saying "must be my ADD" or finishing one of your sentences and saying "must be my ADD". She was not self-diagnosed and, in many ways, was very like Jack.

We had a lot of challenges with Jack taking his medication back in the day. One of his concerns was that no other kids took Ritalin to go to school. He discovered that Billy Joe Armstrong (lead singer of Green Day, and his hero) did, and that worked for a bit. But then he discovered that D did as well. Now he had someone who understood. We encouraged the two of them to talk about it as much as possible.

And they did.

We weren't looking for a therapist... yet we found one. She often asks us what she should do in situations. We told her her instincts are always right... because they always are.

They're rough on each other at times. I've listened to them argue through homework. I've seen him sent to his room for bad language. I've counselled D when she didn't know what to do.

But there is always a love and understanding between those two that I never understood.
And perhaps I never will.


A few weeks ago, D posted something very simple on her Facebook page... one word really.



I am learning through her what I can not through myself. She is very open about her own diagnoses. I'm learning what adults with ADHD are. I see the signs once in a while. I test her once in a while. I watch her use self-focusing techniques (she might not know that I see them). I watch her guide and inspire my son.

I pick her neuroAtypical brain all the time.

Most importantly, I watch the two of them enjoy each other.

Julie and I had the pleasure of meeting D's parents. They came over for a brunch one weekend when they were in town. I don't think we thanked them enough for how wonderful a job they did raising her. They told us how much D was like Jack at that age. They may have given us a glance of our future with the boy.

And for the first time in a long time... Julie and I were hopeful.

If only.


There is so much to learn about our kids from adults on the spectrum...

The neuroAtypical spectrum.
 And Yes, we ordered D her shirt too.

Thank you for loving my boy and teaching us so much.